Establishment of the Brazilian Registry of Hematopoietic Stem Cell Transplantation, using the database the Center for International Blood and Marrow Transplant Research

Authors

  • Cinthya Corrêa da Silva Hospital Israelita Albert Einstein
  • Heliz Regina Alves das Neves Hospital de Clínicas – Universidade Federal do Paraná
  • Anderson João Simione Hospital Amaral Carvalho
  • Bruna Letícia da Silva Santos Geraldo Bio Sana's
  • Marcelo Pasquini 5Clinical Trials Department of Medicine Center for International Blood and Marrow Transplant Research (CIBMTR), Medical College of Wisconsin
  • Adriana Seber Hospital Samaritano, São Paulo
  • Carmen Silvia Vieitas Vergueiro Associação da Medula Óssea
  • Leonardo Javier Arcuri Hospital Israelita Albert Einstein
  • Carmem Maria Sales Bonfim Hospital Pequeno Príncipe
  • Fernando Barroso Duarte
  • Mary E. Flowers
  • Vergílio Antonio Rensi Colturato Hospital Amaral Carvalho
  • Nelson Hamerschlak Hospital Israelita Albert Einstein

DOI:

https://doi.org/10.46765/2675-374X.2021v2n2p100

Keywords:

Hematopoietic Cell Transplant, CIBMTR, Data manager, Database, Outcomes, Information system and Brazil

Abstract

The number of hematopoietic stem cell transplantation (HSCT) in Brazil is growing rapidly. To better understand the outcomes of HSCT in Brazil, strategies have been developed with the Center for International Blood and Marrow Transplant Research (CIBMTR), using its standardized registry structure and data sharing application. The methods adopted to establish the registry were through efforts to increase the Brazilian centers that report to CIBMTR included training courses for HSCT data managers, the officialization of a multicenter HSCT study using the CIBMTR structure and the partnership between Brazilian Society of Bone Marrow Transplantation (SBTMO) and the CIBMTR. Here we describe the history for establishing the HSCT Brazilian database using the CIBMTR back to center data and present the aggregated results since 2016. We found a significant increase in the numbers of active centers reporting to CIBMTR from 11 in 2016 to 21 in 2020 corresponding to higher numbers of transplants reported to the CIBMTR from 574 to 921 in that period. The model used to generate this national database was effective as it leverages existing infrastructure to assess the activity and outcomes of HSCT in Brazil.

 

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Published

07/17/2021 — Updated on 10/01/2021

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How to Cite

da Silva, C. C., das Neves, H. R. A., Simione, A. J., Geraldo, B. L. da S. S., Pasquini, M., Seber, A., Vergueiro, C. S. V., Arcuri, L. J., Bonfim, C. M. S., Barroso Duarte, F., Flowers, M. E. ., Colturato, V. A. R., & Hamerschlak, N. (2021). Establishment of the Brazilian Registry of Hematopoietic Stem Cell Transplantation, using the database the Center for International Blood and Marrow Transplant Research. JOURNAL OF BONE MARROW TRANSPLANTATION AND CELLULAR THERAPY, 2(2), p100. https://doi.org/10.46765/2675-374X.2021v2n2p100 (Original work published July 17, 2021)

Issue

Vol. 2 No. 2 (2021): Journal of Bone Marrow Transplantation and Cellular Therapy

Section

Original article

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