Challenges and strategies used to increase the report of Brazilian Hematopoietic Stem Cell Transplantation (HSCT) data to the Center for International Blood and Marrow Transplant Research (CIBMTR)

Authors

  • Cinthya Corrêa da Silva Hospital Israelita Albert Einstein
  • Heliz Regina Alves das Neves Hospital de Clínicas - Federal University of Paraná, Curitiba
  • Anderson João Simione Amaral Carvalho Hospital, Jau
  • Bruna Letícia da Silva Santos Geraldo Bio Sana’s, Hospital Sao Camilo, São Paulo
  • Eliana Cristina Martins Miranda Hematology and Hemotherapy Center, State University of Campinas, Campinas
  • Marcelo C. Pasquini Clinical Trials Department of Medicine Center for International Blood and Marrow Transplant Research (CIBMTR), Medical College of Wisconsin
  • Monique Suzanne Ammi Minnesota State University Moorhead, NMDP/Be The Mach
  • Adriana Seber Hospital Samaritano, São Paulo; São Paulo State Bone Marrow Association (AMEO), São Paulo
  • Carmen Silvia Vieitas Vergueiro São Paulo State Bone Marrow Association (AMEO), São Paulo
  • Fernando Barroso Duarte Walter Cantídeo University Hospital, Fortaleza
  • Vergilio Antonio Rensi Colturato Amaral Carvalho Hospital, Jau
  • Nelson Hamerschlak Hospital Israelita Albert Eisntein, São Paulo

DOI:

https://doi.org/10.46765/2675-374X.2020v1n1p46-52

Keywords:

Database, Hematopoietic Stem Cell Transplantation, Information system

Abstract

To increase the report of Brazilian hematopoietic stem cell transplantation (HSCT) data to the Center for International Blood and Marrow Transplant Research (CIBMTR), the Data Managers Working Group (GTGD) of the Brazilian Society of Bone Marrow Transplants (SBTMO), and the Sao Paulo State Bone Marrow Association (AMEO) developed several strategies since 2016: training data managers (GDs) in national and international HSCT meetings, the development of a free online teaching course (EAD) in Portuguese on Transplant Essential Data (TED), on­line and presential training course for new data managers offered by AMEO, the approval by the National Committee of Ethics in Research (CONEP) of a national multicenter protocol to formalize sharing data of Brazilian transplants with the CIBMTR, and the first multicenter eval­uation our HSCT results using the CIBMTR Data Back to Center. The contract between SBTMO and CIBMTR was signed in 2019 and GTGD of the SBTMO was officially created. These actions resulted in an increase from 24 to 41 transplant centers registered at the CIBMTR from 2016 to 2019. The process of increasing adherence and continuity of HSCT reports to the CIBMTR is complex and requires commitment of all professionals involved HSCT. The success of this process depends on education of the GD and the involvement of all HSCT directors.

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Published

07/06/2020

How to Cite

da Silva, C. C., Neves, H. R. A. das, Simione, A. J., Geraldo, B. L. da S. S., Miranda, E. C. M., Pasquini, M. C., Ammi, M. S., Seber, A., Vergueiro, C. S. V., Duarte, F. B., Colturato, V. A. R., & Hamerschlak, N. (2020). Challenges and strategies used to increase the report of Brazilian Hematopoietic Stem Cell Transplantation (HSCT) data to the Center for International Blood and Marrow Transplant Research (CIBMTR). JOURNAL OF BONE MARROW TRANSPLANTATION AND CELLULAR THERAPY, 1(2), 46–52. https://doi.org/10.46765/2675-374X.2020v1n1p46-52

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